Contact the physician in charge of Pediatric Oncology at the institution; preferably one who specializes in pediatric brain cancer. It may be helpful to provide the name of the type of tumor your child has so they can pair you with the most appropriate physician. Most reputable institutions have nurses or nurse practitioners who are very helpful in guiding you through the process of obtaining additional physician opinions. Be clear on what they want you to submit and what they will obtain from other institutions. Inquire how to obtain your child’s records as you go along. Records may be obtained through physicians, nurses or the medical records departments. This may include the following:
- Actual slides of the tumor itself so that they can run their own tissue pathology. Do not send the pathology reports from other institutions because you want each center to come up with their own unbiased, independent interpretation.
- Copies of medical consultations, surgical reports and laboratory reports
- Copies of CDs of MRI’s, CT/CAT scans, and X-rays.
This process should be expeditious, so make sure you always retain copies of all of your child’s records, wherever you go. Double-check that all institutions have received all of your child’s records. Many calls may be needed to complete this process. Keep a chart. Follow up is crucial. Secure an appointment with the consulting doctor as soon as possible. The nurses or nurse practitioners may have a suggestion or contact person to help you find temporary lodging if traveling.