About Us

Background

Among children and teenagers, brain tumors are the most common cancer and the leading cause of cancer-related deaths.[1] There are about 28,000 children and teenagers living in the United States with primary brain or central nervous system tumors[2] and an estimated 4,600 more children will be diagnosed each year. [3]

The high death toll reveals a need to quickly find more effective treatment options and a cure.

Mission

The Kamen Brain Tumor Foundation is a non-profit organization that is dedicated to improving the treatment and survival of children with glioma brain tumors through the funding of pediatric glioma brain tumor research.

Our Scientific Advisory Board consists of leading experts in the field of pediatric glioma brain tumors who provide insight and guidance into the most promising research opportunities that examine causes as well as safer, more effective treatment options.

Our objective is to cure children with glioma brain tumors.

Goals

To engage with the research community to identify high priority research studies that search for etiologies and examine promising treatments of pediatric glioma brain tumors

To fund high priority research studies that search for causes and examine promising treatments of pediatric glioma brain tumors

To report to the public those studies that received funding

[1] Ostrom, QT, de Blank, PM, et al. Alex’s Lemonade Stand Foundation Infant and Childhood Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2007‐2011. Neuro Oncol. 2015

[2] Central Brain Tumor Registry of the United States, 2015

[3] Central Brain Tumor Registry of the United States, 2015